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Serious Illness Checklist

You or someone you love has been diagnosed.

10 expert-curated steps · Organized by urgency · Free preview below

What most people ask first

What are my treatment options?

How do I manage care and costs?

Who needs to know?

While You Have Time to Prepare

Research treatment options and get a second opinion

Before committing to a treatment plan, consult at least one other specialist. Bring your records and ask about alternatives.

Why this matters: Different doctors may offer different approaches. A second opinion is standard practice and covered by most insurance.

Organize all medical records in one place

Gather records, test results, imaging, prescriptions, and doctor contact information into a single binder or digital folder.

Why this matters: Every new provider will need your complete history. Having it organized saves days of phone calls and faxing.

Understand your insurance coverage thoroughly

Call your insurance to learn: what treatments are covered, prior authorization requirements, in-network specialists, and your out-of-pocket maximum.

Why this matters: Surprise medical bills add financial stress on top of health stress. Knowing your costs upfront lets you plan.

Set up advance directives and healthcare proxy

Document your medical wishes and designate someone to make healthcare decisions if you can't. Your doctor's office can provide the forms.

Why this matters: If treatment complications arise, these documents ensure your wishes are followed — not guessed at.

Plan for work and income disruption

Understand FMLA, short-term disability, and employer sick leave policies. File paperwork before treatment begins if possible.

Why this matters: Financial stability during treatment lets you focus on getting better, not worrying about bills.

5 more steps available

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Full checklist with all steps
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Assign tasks to family members
"Questions to Ask" for each step
"Things to Know" insider tips
Self-care reminders
Meal coordination for helpers
"I Need Help" shareable task board